Resources are divided into the categories of:
Federal Resources
National Organizations
Online Resources
Treatment and Referral
Family and Support
Other Resources
Federal Resources
Stop Underage Drinking
This site offers links to Federal resources for information on underage drinking and ideas for combating this issue. People interested in underage drinking prevention—including parents, educators, community-based organizations, and youth—will find valuable information here.
Alcohol Policy Information System
The Alcohol Policy Information System provides information on alcohol-related Federal and State policies. It is sponsored by the National Institute on Alcohol Abuse and Alcoholism as a tool for researchers.
Centers for Disease Control and Prevention (CDC) CDC FASD Site
CDC addresses fetal alcohol syndrome (FAS) through the activities of its FAS program, which focuses on prevention. CDC also hosts the National Task Force on FAS/Fetal Alcohol Effect. In addition, diagnostic guidelines are now available online in PDF format.
Computer Retrieval of Information on Scientific Projects (CRISP)
CRISP is a searchable database of federally funded biomedical research projects, including projects related to fetal alcohol syndrome and effects of alcohol on the fetus.
Congressional Caucus on Fetal Alcohol Spectrum Disorders
The mission of the Congressional Caucus on Fetal Alcohol Spectrum Disorders is to educate Members of the United States House of Representatives on issues relevant to preventing fetal alcohol spectrum disorders and increasing the quality of life for those currently living with these debilitating birth defects.
Department of Education
The Department of Education works to oversee, coordinate, improve, and promote public education at the Federal, State, and local level. The department includes the Office of Special Education and Rehabilitative Services and the Office of Vocational and Adult Education.
Grants.gov
Grants.gov provides organizations with the ability to search for Federal Government-wide grant opportunities.
Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB)
Within the Maternal and Child Health Bureau, the Division of Perinatal Systems and Women's Health conducts activities related to FAS prevention.
Homelessness Resource Center
The Homelessness Resource Center is an interactive community of providers, consumers, policymakers, researchers, and public agencies at federal, state, and local levels. They share state-of-the art knowledge and promising practices to prevent and end homelessness.
Indian Health Service (IHS)
The Indian Health Service Behavioral Health Program strives to eliminate alcoholism and other drug dependencies and improve the health care of American Indians and Alaska Natives.
Interagency Coordinating Committee on Fetal Alcohol Syndrome (ICCFAS)
ICCFAS is hosted by the National Institute on Alcohol Abuse and Alcoholism. It includes representatives from various branches of the Department of Health and Human Services, and the Departments of Education and Justice. ICCFAS members work to exchange information and coordinate Federal FAS strategies and programs.
Medicaid Long Term Care Guide
This site provides free assistance to seniors and their families regarding elder care and housing options. They also work closely with veterans and people seeking ALTCS.
National Institute on Alcohol Abuse and Alcoholism (NIAAA)
NIAAA supports research to improve diagnosis and assessment of impairment and disability and to develop tools to enhance academic and daily living skills. Areas of research include screening, diagnosis, and treatment of FASD.
National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect
The National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect is hosted by CDC. The Task Force fosters coordination of activities related to FASD among government agencies, academic bodies, and community groups.
National Organizations
American Pregnancy Association
The American Pregnancy Association is a national health organization committed to promoting reproductive and pregnancy wellness through education, research, advocacy and community awareness.
Child Welfare League of America (CWLA)
CWLA is an association of almost 1,200 agencies that provide services to at-risk children and families, including kinship care, juvenile justice, foster care, adoption, youth development, residential care, day care, family-centered practice, and adolescent pregnancy prevention.
March of Dimes Birth Defects Foundation
March of Dimes researchers, volunteers, educators, outreach workers, and advocates work together to address prematurity, birth defects, and low birthweight.
National Association for Children of Alcoholics (NACoA)
The mission of the NACoA is to advocate for all children and families affected by alcoholism and other drug dependencies. They help kids hurt by parental alcohol and drug use by working to raise public awareness; providing leadership in public policy at the national, state, and local levels; advocating for appropriate, effective and accessible education and prevention services; and facilitating and advancing professional knowledge and understanding.
National Association of Social Workers (NASW)
NASW is the largest membership organization of professional social workers in the world. NASW works to enhance the professional development of its members, create and maintain professional standards, and advance sound social policies.
National Birth Defects Prevention Network (NBDPN)
NBDPN is a group of individuals involved in birth defects surveillance, research, and prevention. The State directory provides contact and program information, including FASD surveillance information.
National Council on Alcoholism and Drug Dependence (NCADD)
NCADD fights the stigma and the disease of alcoholism and other drug addictions. Activities include community prevention and education, advocacy, and resource centers.
National Healthy Mothers, Healthy Babies Coalition (HMHB)
HMHB promotes public awareness and education about prenatal health, develops networks for sharing information, and distributes public and professional education materials.
National Organization on Fetal Alcohol Syndrome (NOFAS)
NOFAS is a nonprofit organization dedicated to eliminating alcohol-related birth defects and improving the quality of life for individuals with FASD and their families.
Organization of Teratology Information Services (OTIS)
Teratology Information Services (TIS) are comprehensive resources for medical consultation on prenatal exposures to drugs, medications, chemicals, and other substances. TIS interpret information regarding reproductive risks into risk assessments that are communicated to individuals and health care providers.
The Arc of the United States
The Arc is the national organization of and for people with mental retardation and related developmental disabilities and their families.
Online Resources
FAS Community Resource Center
The FAS Community Resource Center offers resources related to FASD, such as support groups for families, playgroups for children with FASD, advocacy, materials and training for families and professionals, consultation, and collaboration with community organizations.
FASD Awareness Day
FASD Awareness Day is observed each year on September 9 to raise awareness in every community about fetal alcohol spectrum disorders (FASD). This site provides ideas and information on planning FASD Awareness Day activities.
FASLink
FASlink is the Canadian Fetal Alcohol Syndrome Internet support, information, advocacy, and discussion forum. FASlink maintains a discussion listserv serving hundreds of families and professionals across Canada and in other countries.
Journal of FAS International
This is the only journal devoted solely to fetal alcohol spectrum disorders. It publishes peer-reviewed original papers, as well as case reports, reviews, and critical assessments of papers from other publications. Its editorial board includes noted Canadian and U.S. researchers and clinicians.
National Clearinghouse for Alcohol and Drug Information (NCADI)
NCADI is operated by the Substance Abuse and Mental Health Services Administration. It has one of the largest repositories of alcohol and drug information in the world and offers access to current literature, research reports, and educational resources. NCADI also has a toll-free line.
National Database of FAS and Substance Use During Pregnancy Resources (Canada)
This is a database of Canadian resources related to prevention, intervention, and identification of fetal alcohol syndrome and other substances that can harm fetal development.
Online Clinic
The Online Clinic has information on books, Web sites, and other resources and patient referrals. Various tools are available, including an online calculator for estimating costs of FASD in your community.
DrugRehab.com
The goal of DrugRehab.com is to spread awareness about the intensity of binge and heavy drinking, as well as addiction. They have pages about alcohol addiction (www.rehabcenter.com/addiction/alcohol/) and pregnancy and addiction (www.rehabcenter.com/guides/pregnancy).
Treatment and Referral Resources
Addiction Technology Transfer Center National Office
The Addiction Transfer Technology Center Network is dedicated to identifying and advancing opportunities for improving addiction treatment. The vision is to unify science, education and service to transform the lives of individuals and families affected by alcohol and other drug addiction.
Addiction Center
AddictionCenter.com is a professional web guide that connects individuals struggling with addiction to treatment options. Our goal is to provide families and communities with helpful information and resources on prenatal health, addiction, and recovery options.
Addiction and Pregnancy: A Guide for Expectant Mothers
Site has pages for understanding addiction, the path to recovery, resources and tools, and finding treatment.
Addiction Resource
Addiction Resource was founded in 2014 to provide a community for those recovering from addiction and to help patients find the highest quality care for a successful recovery. Addiction Resource is not a treatment center and does not accept payments or advertising offers. They offer free resources to help people better understand their addiction and make the first step in seeking support.
Alcohol Rehab Guide
This guide helps individuals struggling with alcoholism learn about the disease and find treatment options that best fit their needs. It also provides valuable information for family members and friends looked for ways to support them.
AlcoholTreatment.net
AlcoholTreatment.net is an organization connecting people seeking treatment to the resources they need. They identify the
different option for treatment and help those seeking help with the find the right treatment center to achieve sobriety.
National Organization on Fetal Alcohol Syndrome National and State Directory
Topics include Community Resources and Family Support Groups, Diagnosis of FAS/E and ARND, Prevention Programs, Including Treatment for Women, and Treatment Services for Affected Individuals.
One Sky Center, The American Indian/Alaska Native National Resource Center for Substance Abuse
The mission of the One Sky Center is to improve prevention and treatment of substance abuse among Native people, by promoting culturally appropriate services, identifying and disseminating evidence-based practices, and providing training and technical assistance.
The Recovery Village
The Recovery Village is dedicated to helping those struggling with substance abuse into recovery. Addiction treatment is complex in any situation and even more so for pregnant women, The Recovery Village provides comprehensive alcohol and drug rehab programs, as well as co-occurring mental health issues with a multi-disciplinary approach.
Substance Abuse Treatment Facility Locator
The Substance Abuse and Mental Health Services Administration provides this online resource. The treatment facility locator lists private and public facilities that are licensed, certified, or otherwise approved.
RehabCenter.net
RehabCenter.net is dedicated to connecting people seeking addiction treatment to the resources they need. Their Ultimate Guide to the A.A. Big Book can be found at www.rehabcenter.net/aa-big-book.
Family and Support Groups
FAS Family Resource Institute (FAS FRI)
FAS FRI is a nonprofit organization providing advocacy, support, and information to individuals and families affected by prenatal alcohol exposure.
FAS/E Support Network of British Columbia
The FAS/E Support Network of British Columbia provides information, support, and education for families, professionals, and the community on prevention and intervention for FASD.
FASEout Training Modules (FASEout) Canadian Institute of Child Health (CICH)
FASEout Training Modules is part of the Canadian Institute of Child Health. This site provides PowerPoint training modules used in the FASEout Project and are provided for your use in training. FASEout, presentations have speaking notes and we encourage you to adapt this material for your own use. Additional presentations are included for informational purposes only. All presentations require a familiarity with the subject.
FASworld
FASworld is an international alliance of parents and professionals dedicated to the prevention of fetal alcohol spectrum disorders. FASworld Canada works with the Fetal Alcohol Syndrome Community Resource Center in Tucson to coordinate work in worldwide awareness.
Iceberg (FAS newsletter)
Iceberg is a quarterly international educational newsletter published by the Fetal Alcohol Syndrome Information Service, a parent/professional partnership.
Maternal and Child Health Library (MCH) Preconception and Pregnancy Knowledge Path
The MCH Library at Georgetown University provides accurate and timely information including the weekly newsletter MCH Alert, resource guides, full text publications, databases, and links to quality MCH sites. Knowledge paths on maternal and child health-related topics contain selections of recent, high quality resources and tools for staying abreast of new developments and conducting further research. Components of a knowledge path include links to Web sites, electronic publications, databases, and discussion groups.
Parent Support Groups
The University of Washington Fetal Alcohol and Drug Unit provides this list of support groups in the United States, Canada, and several other countries.
PARENTS, Inc.
PARENTS is a partnership of Alaska families with disabilities that provides support, training resources, and advocacy statewide. Educational packets on FAS are available.
Other Resources
cordbloodbanking.com
provides the latest up-to-date information and free resources for expecting parents. There have been over 35,000 cord blood transplants thanks to donors worldwide. With more awareness we can increase this number and further save the lives of children suffering from cancer and other serious illnesses.
Pest Control for Expectant Mothers
Expectant mothers are warned away from potential hazards like sushi, soft cheeses and even the litter box. But where does household pest control methods fit into to pregnancy health?
Sleep and Addiction
In this guide authors explore the common sleep disorders associated with addiction, the cyclical relationship between addiction and sleep, and suggested resources and strategies for managing sleep during recovery.
Stop Underage Drinking
This site offers links to Federal resources for information on underage drinking and ideas for combating this issue. People interested in underage drinking prevention—including parents, educators, community-based organizations, and youth—will find valuable information here.
Alcohol Policy Information System
The Alcohol Policy Information System provides information on alcohol-related Federal and State policies. It is sponsored by the National Institute on Alcohol Abuse and Alcoholism as a tool for researchers.
Centers for Disease Control and Prevention (CDC) CDC FASD Site
CDC addresses fetal alcohol syndrome (FAS) through the activities of its FAS program, which focuses on prevention. CDC also hosts the National Task Force on FAS/Fetal Alcohol Effect. In addition, diagnostic guidelines are now available online in PDF format.
Computer Retrieval of Information on Scientific Projects (CRISP)
CRISP is a searchable database of federally funded biomedical research projects, including projects related to fetal alcohol syndrome and effects of alcohol on the fetus.
Congressional Caucus on Fetal Alcohol Spectrum Disorders
The mission of the Congressional Caucus on Fetal Alcohol Spectrum Disorders is to educate Members of the United States House of Representatives on issues relevant to preventing fetal alcohol spectrum disorders and increasing the quality of life for those currently living with these debilitating birth defects.
Department of Education
The Department of Education works to oversee, coordinate, improve, and promote public education at the Federal, State, and local level. The department includes the Office of Special Education and Rehabilitative Services and the Office of Vocational and Adult Education.
Grants.gov
Grants.gov provides organizations with the ability to search for Federal Government-wide grant opportunities.
Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB)
Within the Maternal and Child Health Bureau, the Division of Perinatal Systems and Women's Health conducts activities related to FAS prevention.
Homelessness Resource Center
The Homelessness Resource Center is an interactive community of providers, consumers, policymakers, researchers, and public agencies at federal, state, and local levels. They share state-of-the art knowledge and promising practices to prevent and end homelessness.
Indian Health Service (IHS)
The Indian Health Service Behavioral Health Program strives to eliminate alcoholism and other drug dependencies and improve the health care of American Indians and Alaska Natives.
Interagency Coordinating Committee on Fetal Alcohol Syndrome (ICCFAS)
ICCFAS is hosted by the National Institute on Alcohol Abuse and Alcoholism. It includes representatives from various branches of the Department of Health and Human Services, and the Departments of Education and Justice. ICCFAS members work to exchange information and coordinate Federal FAS strategies and programs.
Medicaid Long Term Care Guide
This site provides free assistance to seniors and their families regarding elder care and housing options. They also work closely with veterans and people seeking ALTCS.
National Institute on Alcohol Abuse and Alcoholism (NIAAA)
NIAAA supports research to improve diagnosis and assessment of impairment and disability and to develop tools to enhance academic and daily living skills. Areas of research include screening, diagnosis, and treatment of FASD.
National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect
The National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect is hosted by CDC. The Task Force fosters coordination of activities related to FASD among government agencies, academic bodies, and community groups.
National Organizations
American Pregnancy Association
The American Pregnancy Association is a national health organization committed to promoting reproductive and pregnancy wellness through education, research, advocacy and community awareness.
Child Welfare League of America (CWLA)
CWLA is an association of almost 1,200 agencies that provide services to at-risk children and families, including kinship care, juvenile justice, foster care, adoption, youth development, residential care, day care, family-centered practice, and adolescent pregnancy prevention.
March of Dimes Birth Defects Foundation
March of Dimes researchers, volunteers, educators, outreach workers, and advocates work together to address prematurity, birth defects, and low birthweight.
National Association for Children of Alcoholics (NACoA)
The mission of the NACoA is to advocate for all children and families affected by alcoholism and other drug dependencies. They help kids hurt by parental alcohol and drug use by working to raise public awareness; providing leadership in public policy at the national, state, and local levels; advocating for appropriate, effective and accessible education and prevention services; and facilitating and advancing professional knowledge and understanding.
National Association of Social Workers (NASW)
NASW is the largest membership organization of professional social workers in the world. NASW works to enhance the professional development of its members, create and maintain professional standards, and advance sound social policies.
National Birth Defects Prevention Network (NBDPN)
NBDPN is a group of individuals involved in birth defects surveillance, research, and prevention. The State directory provides contact and program information, including FASD surveillance information.
National Council on Alcoholism and Drug Dependence (NCADD)
NCADD fights the stigma and the disease of alcoholism and other drug addictions. Activities include community prevention and education, advocacy, and resource centers.
National Healthy Mothers, Healthy Babies Coalition (HMHB)
HMHB promotes public awareness and education about prenatal health, develops networks for sharing information, and distributes public and professional education materials.
National Organization on Fetal Alcohol Syndrome (NOFAS)
NOFAS is a nonprofit organization dedicated to eliminating alcohol-related birth defects and improving the quality of life for individuals with FASD and their families.
Organization of Teratology Information Services (OTIS)
Teratology Information Services (TIS) are comprehensive resources for medical consultation on prenatal exposures to drugs, medications, chemicals, and other substances. TIS interpret information regarding reproductive risks into risk assessments that are communicated to individuals and health care providers.
The Arc of the United States
The Arc is the national organization of and for people with mental retardation and related developmental disabilities and their families.
Online Resources
FAS Community Resource Center
The FAS Community Resource Center offers resources related to FASD, such as support groups for families, playgroups for children with FASD, advocacy, materials and training for families and professionals, consultation, and collaboration with community organizations.
FASD Awareness Day
FASD Awareness Day is observed each year on September 9 to raise awareness in every community about fetal alcohol spectrum disorders (FASD). This site provides ideas and information on planning FASD Awareness Day activities.
FASLink
FASlink is the Canadian Fetal Alcohol Syndrome Internet support, information, advocacy, and discussion forum. FASlink maintains a discussion listserv serving hundreds of families and professionals across Canada and in other countries.
Journal of FAS International
This is the only journal devoted solely to fetal alcohol spectrum disorders. It publishes peer-reviewed original papers, as well as case reports, reviews, and critical assessments of papers from other publications. Its editorial board includes noted Canadian and U.S. researchers and clinicians.
National Clearinghouse for Alcohol and Drug Information (NCADI)
NCADI is operated by the Substance Abuse and Mental Health Services Administration. It has one of the largest repositories of alcohol and drug information in the world and offers access to current literature, research reports, and educational resources. NCADI also has a toll-free line.
National Database of FAS and Substance Use During Pregnancy Resources (Canada)
This is a database of Canadian resources related to prevention, intervention, and identification of fetal alcohol syndrome and other substances that can harm fetal development.
Online Clinic
The Online Clinic has information on books, Web sites, and other resources and patient referrals. Various tools are available, including an online calculator for estimating costs of FASD in your community.
DrugRehab.com
The goal of DrugRehab.com is to spread awareness about the intensity of binge and heavy drinking, as well as addiction. They have pages about alcohol addiction (www.rehabcenter.com/addiction/alcohol/) and pregnancy and addiction (www.rehabcenter.com/guides/pregnancy).
Treatment and Referral Resources
Addiction Technology Transfer Center National Office
The Addiction Transfer Technology Center Network is dedicated to identifying and advancing opportunities for improving addiction treatment. The vision is to unify science, education and service to transform the lives of individuals and families affected by alcohol and other drug addiction.
Addiction Center
AddictionCenter.com is a professional web guide that connects individuals struggling with addiction to treatment options. Our goal is to provide families and communities with helpful information and resources on prenatal health, addiction, and recovery options.
Addiction and Pregnancy: A Guide for Expectant Mothers
Site has pages for understanding addiction, the path to recovery, resources and tools, and finding treatment.
Addiction Resource
Addiction Resource was founded in 2014 to provide a community for those recovering from addiction and to help patients find the highest quality care for a successful recovery. Addiction Resource is not a treatment center and does not accept payments or advertising offers. They offer free resources to help people better understand their addiction and make the first step in seeking support.
Alcohol Rehab Guide
This guide helps individuals struggling with alcoholism learn about the disease and find treatment options that best fit their needs. It also provides valuable information for family members and friends looked for ways to support them.
AlcoholTreatment.net
AlcoholTreatment.net is an organization connecting people seeking treatment to the resources they need. They identify the
different option for treatment and help those seeking help with the find the right treatment center to achieve sobriety.
National Organization on Fetal Alcohol Syndrome National and State Directory
Topics include Community Resources and Family Support Groups, Diagnosis of FAS/E and ARND, Prevention Programs, Including Treatment for Women, and Treatment Services for Affected Individuals.
One Sky Center, The American Indian/Alaska Native National Resource Center for Substance Abuse
The mission of the One Sky Center is to improve prevention and treatment of substance abuse among Native people, by promoting culturally appropriate services, identifying and disseminating evidence-based practices, and providing training and technical assistance.
The Recovery Village
The Recovery Village is dedicated to helping those struggling with substance abuse into recovery. Addiction treatment is complex in any situation and even more so for pregnant women, The Recovery Village provides comprehensive alcohol and drug rehab programs, as well as co-occurring mental health issues with a multi-disciplinary approach.
Substance Abuse Treatment Facility Locator
The Substance Abuse and Mental Health Services Administration provides this online resource. The treatment facility locator lists private and public facilities that are licensed, certified, or otherwise approved.
RehabCenter.net
RehabCenter.net is dedicated to connecting people seeking addiction treatment to the resources they need. Their Ultimate Guide to the A.A. Big Book can be found at www.rehabcenter.net/aa-big-book.
Family and Support Groups
FAS Family Resource Institute (FAS FRI)
FAS FRI is a nonprofit organization providing advocacy, support, and information to individuals and families affected by prenatal alcohol exposure.
FAS/E Support Network of British Columbia
The FAS/E Support Network of British Columbia provides information, support, and education for families, professionals, and the community on prevention and intervention for FASD.
FASEout Training Modules (FASEout) Canadian Institute of Child Health (CICH)
FASEout Training Modules is part of the Canadian Institute of Child Health. This site provides PowerPoint training modules used in the FASEout Project and are provided for your use in training. FASEout, presentations have speaking notes and we encourage you to adapt this material for your own use. Additional presentations are included for informational purposes only. All presentations require a familiarity with the subject.
FASworld
FASworld is an international alliance of parents and professionals dedicated to the prevention of fetal alcohol spectrum disorders. FASworld Canada works with the Fetal Alcohol Syndrome Community Resource Center in Tucson to coordinate work in worldwide awareness.
Iceberg (FAS newsletter)
Iceberg is a quarterly international educational newsletter published by the Fetal Alcohol Syndrome Information Service, a parent/professional partnership.
Maternal and Child Health Library (MCH) Preconception and Pregnancy Knowledge Path
The MCH Library at Georgetown University provides accurate and timely information including the weekly newsletter MCH Alert, resource guides, full text publications, databases, and links to quality MCH sites. Knowledge paths on maternal and child health-related topics contain selections of recent, high quality resources and tools for staying abreast of new developments and conducting further research. Components of a knowledge path include links to Web sites, electronic publications, databases, and discussion groups.
Parent Support Groups
The University of Washington Fetal Alcohol and Drug Unit provides this list of support groups in the United States, Canada, and several other countries.
PARENTS, Inc.
PARENTS is a partnership of Alaska families with disabilities that provides support, training resources, and advocacy statewide. Educational packets on FAS are available.
Other Resources
cordbloodbanking.com
provides the latest up-to-date information and free resources for expecting parents. There have been over 35,000 cord blood transplants thanks to donors worldwide. With more awareness we can increase this number and further save the lives of children suffering from cancer and other serious illnesses.
Pest Control for Expectant Mothers
Expectant mothers are warned away from potential hazards like sushi, soft cheeses and even the litter box. But where does household pest control methods fit into to pregnancy health?
Sleep and Addiction
In this guide authors explore the common sleep disorders associated with addiction, the cyclical relationship between addiction and sleep, and suggested resources and strategies for managing sleep during recovery.